Problem: Educating About the Rare Glut1 Deficiency Syndrome
Glut1 Deficiency is a rare genetic condition for which there is currently no cure. Ensuring individuals from lay people to practicing clinicians are educated about the disease is crucial to aiding earlier diagnoses and better outcomes for those affected.
Solution: Whiteboard Animation Video to Explain Complex Genetics
The Glut1 Deficiency Foundation collaborated with Diffusion Studios to develop a whiteboard animation style video designed to describe the
complex genetic science behind G1D Syndrome. The script and accompanying illustrations were created in such a way that the material is
approachable by people of all ages and can serve as a basis for conversations about the condition between affected individuals, their families, and healthcare providers.
Result: Widely Shared Video Raising Awareness and Supporting Families
A thorough review of resource material and close collaboration with the Glut1 Deficiency Foundation ensured the content accurately represented the condition and experiences of those affected by G1D Syndrome. The video has been shared at conferences and through web-based channels such as YouTube often, creating awareness of the condition and providing families with information they can use to communicate to others about this inherited disease. T. Rebbecchi, MD, Glut1 Deficiency Foundation, Scientific Advisory Board Member shared that the video is a “HUGE hit in the G1DS community.”
Watch a Glut1 Deficiency Foundation partnership video:
Key Takeaways
- Glut1 Deficiency Foundation partners with Diffusion Studios to highlight rare genetic condition.
- Animated video simplifies complex genetics.
- Video supports communication between families, patients, and clinicians.
Sources
- https://www.g1dfoundation.org/what-is-glut1-deficiency.html
- https://www.youtube.com/watch?v=1xeP76FUFcM